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in Febuary of 2006 I was diagnosed with Primary Pulmonary Hypertension , and told that I had approxamatly 2-4 years to live.. that is without a bi-latteral lung and Heart transplant.

in Febuary of 2006 I was diagnosed with Primary Pulmonary Hypertension , and told that I had approxamatly 2-4 years to live.. that is without a bi-latteral lung and Heart transplant.

Since the first diagnosis i have had other doctors oppinions, each ending with the same outcome. I am only 40 years old, but have not been able to work much, I have a 14 year old daughter, whom i love very much. She has chosen to be by my side while i go thru the everyday grind. Her mother has not been a part of our lives for some time, due to drugs and poor choices she is now in prison. 

The problem is this, We have no money whatsoever, I have applied for social security bennifits, but was turned down because of my work history,(not enough billable hours) so then applied for SSI which i havent been able to get yet because I had no birth certificate, well that is now coming but it takes 4 months to go thru after i submit my birth certificiate.

We need a break, we have both struggled so hard this year , it is so frustrating. we were just evicted from our appartment in tempe Arizona, because i couldnt get assistance yet,because of the birth certificate taking so long to arive.. as it stands right now, Her best friends parents have been wonderfull enough to let her stay there for a few days untill i can figure something out.

please if there is anything anyone can do financially or other let me know.

thank you very much. 

Please check out the links to the right of the page to learn more about the medical conditions.. It will tell the early signs and symptoms which could save someones life..

This is a space dedicated to my son Justin and the medical conditions that are slowly taking his life.. A little over 2 years ago he was diagnosed with a rare disease known as Wegeners Granulomatosis.  It is both an autoimmune and vascular disease to which there is no cure for..  It is treatable and if caught early enough can even go into remisssion.  However, without medication and going untreated the disease is deadly and can take you quickly.  There are differents stages of Wegeners.. It includes the sinuses, lungs, skin, joints, eyes, kidney, heart and all vital organs. 

Also Justin is now at Stage 5 Chronic Renal Failure, which is known as "End Stage" Renal Failure.   His life will now consist of dialysis 3 times a week for the remainder of his life, however long or short of time that may be.

I want to make people aware of theses medical condtions.  Maybe it could prevent another child to have to face what Justin has at such a young age by letting people learn the early signs and symptoms...   

Thanks for taking the time to visit our space here on Aidpage.